This is the first in a series of four posts based on my experience of planning people's funerals. These posts were inspired by an interesting debate on Jane's blog. I wanted to share some of the stories on the subject that I've heard from families over the years.
When I visited Sarah to plan the funeral of her husband John, I found her being kept company by Dolly, her best friend and next-door neighbour. I was put in a comfortable armchair and given tea and biscuits – 'bit early for gin,' Sarah said, smiling a twinkly smile, and as it was ten o'clock in the morning I could only agree.
They were happy for me to lead the meeting, so I took them through the peripheral decisions about music, readings, poetry and announcements before focusing on the celebration of John's life. Sarah wanted me to give a tribute to him, so I asked her to tell me about his life. She spoke about his childhood as the studious one of six children, his academic successes, his work as a civil servant, his love of ideas, his dismay when faced with practical tasks, the birth of their children and grandchildren, John's endless patience with them and skill in inventing games, his schoolboy sense of humour, family holidays in France and Spain, the first decade of retirement when he and Sarah travelled more widely.
'Wasn't it when you were in Trinidad that you first noticed something amiss?' Dolly asked.
'Yes,' Sarah said. 'He couldn't remember the way back to our hotel. We'd just eaten at a place we'd already been to a couple of times, and it was only a few hundred yards from the hotel.'
'He joked about it to begin with, didn't he,' Dolly said.
'Like he did with everything. We always made a joke of things. Said it was senility creeping in.'
'Not much of a joke, seeing as he was right.'
'No. But we laughed anyway.'
Dolly turned to me. 'I have to tell you, Zinnia, because Sarah won't. She was amazing. She looked after John so well.'
'I wanted to keep him at home,' Sarah said.
'And you did.' Dolly's tone was reassuring.
'Not entirely.'
'Near enough.' She looked at me again. 'You see, Zinnia, he wasn't so bad at first, but after a while he needed constant care because he was so forgetful. He would put the plug in the sink, start the tap running and then wander off and flood the place.'
'The doctor wanted me to put him in a home,' Sarah said.
'Because you were getting so run down with looking after him,' Dolly said firmly. 'He wasn't a difficult man, he wasn't aggressive or unhappy like some people get.'
'No, he always stayed happy. And although he seemed to forget how to speak over time, so in the last few years he hasn't said much at all, he still enjoyed the same things.'
'Port and stilton.'
'And watching the news at ten.'
'But you had to have a break now and again, Sarah.' Dolly turned to me again. 'She was very well organised, she got a rota sorted out for friends and neighbours to come and sit with John so that she could get out to the hairdresser and the library and the shops. But that was only a couple of hours twice a week or so. It wasn't enough.'
'So what did you do?' I asked.
'He went to a care home for two weeks' respite,' Sarah said. 'I was very reluctant to let him go. I thought he would hate it and I didn't trust them to look after him properly. But they were great.'
'Tell Zinnia about the first time,' Dolly said.
'I found it so hard to leave him there. I visited every morning, afternoon and evening for the first couple of days. The staff were great, really welcoming. I'd have visited at night, too, if I could have done. The nights were really hard without John in the house, we'd never been apart at night except when I had the children. But he was perfectly happy in the care home, he didn't seem bothered at all.'
'And then the matron called you in for a chat, didn't she?'
'Yes. She gently pointed out that I wasn't going to get much of a break if I was spending all my time at the home. She asked me if there was anything I was worried about. I told her everything, and she was so understanding. We worked out a system where they would send me a text message morning and evening to say how John was. She made it clear that I could still visit any time I wanted, or phone, even if it was in the middle of the night. Which I did a couple of times, and they were always lovely, they would go and check on John and come back and tell me that he was sleeping.'
So what happened after that?' I asked.
'He went for a fortnight every three months,' Sarah said. 'He was always happy to go and happy to come back. And they did look after him very well. Better than I did, probably. But I always hated it.' Her chin wobbled.
'You couldn't have managed without it.' Dolly was using her reassuring voice again.
'No. And I nearly couldn't manage with it. You see, Zinnia,' she looked at me through brimming eyes, 'the doctor had persuaded me that John should go in full-time. I've got health problems too, now, and I've really been struggling. I'd agreed to it. He was going to move next week. And I can't help thinking that maybe, somehow, he knew.' Her tears overflowed and ran down the channels in her cheeks. 'As if it was my decision that killed him.'
Dolly moved along the sofa and put her arm around her friend's shaking shoulders. 'You silly girl,' she said, and patted her arm. 'He was 79 years old and died of perfectly natural causes. It was nothing to do with your decision.'
Sarah pulled a tissue from her sleeve and dabbed at her face. 'I suppose I am a daft old thing. And, you know, they were really good at the home. To both of us. They've been in touch every day since John died, they sent those lovely flowers,' she pointed to a bouquet of carnations and freesias on the mantelpiece, 'and some of them will be coming to the funeral. But I just didn't want him to go there. It was a lot of years ago, but when I said 'till death us do part' I really meant it.'
'And that's what happened, isn't it?' Dolly said.
'I suppose it is.' Sarah blew her nose. 'I just wish – I still wish I'd been able to do it all myself. Properly.'
'Oh, for goodness' sake. You do my head in, you do.' Dolly turned to me and jabbed a thumb towards Sarah. 'She's always like this. Such a perfectionist. She was a wonderful wife to John. Nobody could have been more caring.' She pointed to my laptop. 'You write that down and put it in your service.'
'It's supposed to be about John – '
Dolly interrupted Sarah's protest. 'Quiet now. That is about John, that he had a devoted wife who cared for him to the end of her own strength. He'd want it saying.'
Sarah turned to me. 'Well, then, you can thank Dolly for her support, Zinnia, when you do the announcements at the end.'
'Don't start.'
The two old women were facing each other now, one at each end of the sofa, elbows akimbo like combatants on the ropes of a ring.
'You know I couldn't have done it without you.'
'Nonsense. I only sat with John every now and then.'
'You can't have forgotten all those evenings. Zinnia, write this down. I told Dolly, once, how the evenings dragged. After that, every single week she would come round with a bottle of wine and spend an evening with me.'
'And how is that about John, exactly?' Dolly demanded.
'It all helped me to care for him. Nobody else did that for me, not regular like you did. It gave me something to look forward to.'
Dolly broke eye contact, defeated. 'Daft old trout,' she muttered.
Sarah folded her arms and sat up straight in triumph.
Monday, June 25, 2007
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20 comments:
Crumbs, that's heartbreakingly lovely...
What a beautiful story. You have tears pricking the back of my eyelids.
Of course, I can't help thinking it would be a perfect story if Dolly and Sarah were lovers.
That's wonderful. You really brought the two of them alive. How touching was the part about "I thought he knew I was going to send him away [and that's why he died]"? Awwwww.
Glad you're back. And thanks for this. Old age - what happens - needs to be explored. Painful as it is when it's like this. But also so loving. Did you see the film with Julie Christie - ?Away from Her...I think. Explores just that
I was just thinking: this is about how being old is not a characteristic; 'old' is never a very enlightening description of anyone. 'Kind', 'generous', 'patient', 'empathetic', 'honest','humorous', 'content', 'self-deprecating', 'good friend': those are meaningful descriptions, characteristics that endure in old age and hard times - and whose lack gets more and more glaring if you never had them.
Zinnia this is so true to life. My much loved brother was stricken with Alzheimers in his fifties. He survived for years - and it really was a continual bereavement - and then suddenly he died within two days of my mother's death. For years he was completely lost and I used to pray for him to be set free.
I think women friends are just so great.
JJx
This is so moving - you captured their voices brilliantly.
I'm glad they had each other.
Wonderful story and wonderfully written.
Now I just have to explain to my workmates why my eyes are wet...
that's so so lovely.
You are a GENIUS, you know that, don't you? You made me wepp, you wrote that so well! Congratulations. I'm still one of your great fans, you know!
That was so touching, warm, human and heartfelt. Thank you so much.
Cyalayta
Mal :)
That was a wonderful story, Zinnia. I am so glad Sarah had Dolly. And also that the people in the home were so caring.
I think, though, it does highlight some of the problems I was discussing on my blog.
It is my belief that as far as possible people should be supported to stay in their own homes. Clearly this cannot always be the case - I think alzheimers is exceptionally hard on the carer, and almost always the person afflicted will need more help then can be offered at home. However, where couples can stay together, I think they should. What grieves me is the lack of support for them to do so. Fil had carers three times a day in the end. The last one came to put him to bed at night and left at the latest by 9pm. The first one came in at the earliest at 7am. Mil who was already in her late 70s and has an appalling shake (in part caused by the stress of first caring for her mil, then for her husband), was left alone with him for ten hours every night. He didn't sleep, needed help going to the loo. She got less and less sleep, and was practically on her knees before he died. We got him some urgent respite care (I offered to have him but he wouldn't come to us!) which though adequate, was not I felt good enough. The home were pretty stroppy with mil for wanting to spend time with him in the second week he was there, and I found in the main their attitude was fairly uncaring (with one or two honourable exceptions). I know it is not always possible to keep our loved ones out of nursing homes, but not enough of them are like John's, and that I think is shameful in a civilised society.
So far mil can manage on her own, and I would like that to continue for as long as possible. Because the other side of the coin, is that once someone loses independence it is often an incrementally slow decline. If and when that moment comes, we are prepared to offer her a home (and are lucky enough to have the space to), but I admit I am gulping at the thought as it is a big big burden. But one she has borne for others incredibly unselfishly, so the least we can do is look after her.
Somehow, though, there needs to be a better way of letting couples stay together, of helping them adapt if they are apart, and of still treating people as individuals, however desperate their situation.
Long may homes like John's survive.
Would that there were more of them.
Looking forward to the next posts!
Great post. Humane and not patronising. The elderly are too often forgotten - their stories often have so much depth. That was my first visit to your blog - I'll be back.
You made me weep.......the love of husband and wife and friends.....double whammy!
Great Blog...just fell into it and will again!
That wer' riiight beautiful, that wer'.
Jen: thanks
Leatherdyke: maybe they were, who knows?
Ctaylor: thanks
GrannyP: no, I haven't seen that film - I'll look out for it on DVD
Jean: quite
Pat: how awful, I'm so sorry to hear that. It must have been terrible to go through, especially when he was so young. ((((hug))))
JJ: I know!
Lucy, Tom, Birdy, TG: thank you.
Jane: I agree. Interestingly, my next post (drafted before you commented) covers a number of these points. Everyone's experience is different, and I know some are much less positive than others, but in my work I only seem to have met the satisfied customers. (So far...)
Chocolate Sandwich and Jan: hello, welcome and thank you.
Liz and Shane: thanks
what a great post. so poignant and beautifully written, as always.
maybe I have a major coping mechanism missing or something, but somehow I can never picture myself, full of grief for a loved one, being able to stand up and talk at length about their life at their funeral or even while planning it. the thought is just unbearable.
I think you do a marvellous job, zinnia, and those families must feel really very lucky to have you as their funeral celebrant.
Lovely, really lovely. Thank you. I could almost see those two ladies.
Wow, what a sensitively written story. This made a hundred things go through my head, about parents, partners, one day we'll get old [if we're allowed to live long], my grandmother as she lay dying, helping my mother to keep an eye on her...
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